Pastelbat @pastelbat@awoo.space

Also the "no-one joins the dots" thing is so true

My joints are one problem. They are not the only problem, or even the biggest problem my EDS causes.

But no-one gets told about the other symptoms, because they're not the diagnostic criteria. So unless you're seeing a specialist, of which there are none, they will never be considered.

"Because EDS covers every area of the body, and every medical discipline, what is really needed are specialist centres or clinics where care can be co-ordinated. There is only 1 such unit in the whole of the UK and it’s in London at UCLH, so unless you live there you’re scuppered. They do have a 2 week inpatient unit, but afterwards you’re sent back to where you live with no follow-through. Many people with EDS therefore find they are just left to get on with it, or see Consultant after Consultant with no specialist knowledge of EDS. No-one joins the dots or looks at the disease as a whole which can be highly frustrating!"

This so much

This is why I'm rapidly turning into one of those "eh why bother seeing a doctor, it's not worth it" types

Not because I think I'm immortal or I'll get eaten by an evil vaccine

Just being so, so tired of 101 advice for other, more common conditions, from a string of clinicians who've never even heard of it -.-

(source: https://mastcellblog.wordpress.com/guides/edsguide/)

This is such a good match between two very bouncy wrestlers

https://www.youtube.com/watch?v=QODh4ZWyJ-Y

Megaquarium is good. Peaceful managing with pretty fish. I need that kinda friendly chill game a lot right now.

(Some fish are jerks, but it just means you gotta be careful where you put them)

Started on painting the Dominion expansion for Star Trek: Fleet Captains this week.

So here is a lil Jem'hadar ship

Waking up to find your government throw their full weight behind transphobia is always, yknow.

Not fun. That other thing.

This year feels like it has mostly been spent watching lots of wrestling

It good? Like, I never got into it when I was younger, got into Chikara a few years back, which was fun indie stuff (now gone, owner was awful). Been watching AEW since a partner introduced me to it.

AEW Dark (freebie Youtube weekly show) is really good! Like, goofy indie-vibe stuff with lots of high-flyers is my thing way more than growly musclemen, and Dark is way more that-kinda-thing than their main TV show (Dynamite).

Happily surprised that the one I look forward to every week is free on Youtube.

Lizard Wizard (Skink Starpriest)

speepy today

speepy everyday, tbf

prrr

mawooning

Thinking of setting up an account somewhere just for tabletop stuff.. 🤔

Going to play my first game of Lancer today!

I have little idea of my background but I do have a giant robot with a gianter sword

So ought to be fun

Today I stumbled upon the realisation that Jojo's Bizarre Adventure has the plot and themes of a Cardassian repetitive epic, and now I want to see this so very badly

yeah, me too buddy #warhammer

flop

o/

I was worried it would just be a nostalgia trip, but instead it uses the period & the context as incredible framing to enable some incredible storytelling techniques

in part because what it simulates is corporate-space artificiality, the arbitrary mechanical rules and the forced detachment, so those aspects of gameplay enhance the immersion rather than damaging it

also playing with the detached-observer perspective, the mindset it pushes you into and all its contradictions

Domesticated Species:

Brown Rat -> Fancy Rat
House Mouse -> Fancy Mouse
Rock Dove -> Fancy Pigeon
(Prehistoric) Wolf -> Dog

Nononono

(Prehistoric) Wolf -> Fancy Wolf

Perfect

👏