survey participants wanted: ME/CFS, long COVID, POTS, hEDS, MCAS 

"The Chronic Illness Survey Adventure (Symptom Cluster Characterization in Complex Chronic Disease) is a survey-based study to probe more deeply into ME/CFS, long COVID, POTS [postural orthostatic tachycardia syndrome], hEDS [hypermobile Ehlers-Danlos syndrome], and MCAS [mast cell activation syndrome]."

18+ only, open worldwide.

meaction.net/epi/faq/

thecanary.co/feature/2021/05/3

re: survey participants wanted: ME/CFS, long COVID, POTS, hEDS, MCAS 

@porsupah hm, fibromyalgia seems to be missing from their list of usual suspects. Accidental oversight, or do they already have too many fibro folks?

re: survey participants wanted: ME/CFS, long COVID, POTS, hEDS, MCAS 

@porsupah ah, they do specifically call out fibromyalgia as another thing they want to study but they don't have the funding for it just yet. Guess I'll have to wait.

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