re: survey participants wanted: ME/CFS, long COVID, POTS, hEDS, MCAS
@porsupah hm, fibromyalgia seems to be missing from their list of usual suspects. Accidental oversight, or do they already have too many fibro folks?
re: survey participants wanted: ME/CFS, long COVID, POTS, hEDS, MCAS
@fluffy Could be worth checking with them - perhaps it's early enough for it to be added.
re: survey participants wanted: ME/CFS, long COVID, POTS, hEDS, MCAS
@porsupah ah, they do specifically call out fibromyalgia as another thing they want to study but they don't have the funding for it just yet. Guess I'll have to wait.