getting my genome tested under socialised healthcare because theyve noticed i have quite a few chronic conditions woop woop, oh yeah baby, backing my truck up to find out all sorts of juicy potentials in my family's DNA that i have no capacity to pass on to any child sans gonads.
s'all because they messed up my new nhs number so i had to go and sit with a doctor and outline every condition i have thats ongoing with me and when we got to four as well as "and transgender" he was like, so im thinking it might be a good idea to get you genetically tested how does that sound.
and im like wooop woop yeah baby give me all that interesting data to pore over without me having to sell my soul to 23andMe.
The request for genetic testing got sent to Great Ormand Street and it was like its gonna be along wait (happening finally this coming month), and somewhere along the way someone looked at my chart and was like - whats this, a 6 foot woman with a slight chest wall deformity from bith? well we better get her tested for marfan syndrome toot suite!
all of which happened while im off in New York, so now i have a series of annoyed letters saying "we have twice scheduled for you to get tested for marfan syndrome and twice heard nothing from you". And its like, bb if i had marfan, id be like 6'9.
and before anyone feels sorry for me with my vast array of conditoins, one of them is "has the softest velvety smooth skin you have ever felt but yet has never moisturised her body (my face on the other hand is a nightmare desert that requires constant oil), and her joints have slight extra bend to them but dont dislocate or have any pain associated to them. Mild EDS 😎
@pastelbat yeah deeply sorry, my previous flatmate had a far worse version of EDS and it does not seem fun in any way :(