venting, temporal flux/illness
So now instead of August 14th/31st, it's looking like Aug 21/September 13th for the physical regimen and then transplant
_maybe_!?!?
despite what was said two weeks ago they still didn't give me a concrete answer until I go and call
*again*
like, that's all I want at this point, is just to put a dart on the board and COMMIT TO A DAY
dont even feel like I can come home until I at least have *that*, 'cuz it still could change.
Again.
Again.
*Again.*
Rrrgh.
venting, temporal flux/illness
@neonNeptunian Aaaaaugh. That is so goddamned ridiculous D:
venting, temporal flux/illness
@neonNeptunian
*gentle hugs and petting and reinforcing of what others have already kindly said*
venting, temporal flux/illness
@neonNeptunian Oh hell, dude.
That's shitty and you and your brother deserve better, both of you.
venting, temporal flux/illness
@literorrery I can understand /why/-- no doubt, wanting to make sure conditions are right, that the cancer is actually in sufficient recession before passing my blood over.
It doesn't really excuse how hard it's been to pin a fucking bead down over when this all is supposed to happen, though. Like, just some extra communication.
*grump, grump*
venting, temporal flux/illness
@neonNeptunian I can understand too. That doesn't excuse them not seemingly having a plan, not communicating it, and not explaining when and why it's changing. Your willingness to do this shouts volumes of your dedication but you have your own life too, and they should be respectful of that fact.
venting, temporal flux/illness
@neonNeptunian You are allowed to be an equal to others. You are allowed, nay encouraged, to ask that your needs and wants be considered as well. You are allowed to be more in the world than a sponge for others' suffering. Please be well. We're thinking of you and we miss you too.
venting, temporal flux/illness
@literorrery @neonNeptunian Piggybacking on this, boosting it, etc. Everything said here. You are more than your ability to help, you are a being worthy of respect and care and joy.
@literorrery @neonNeptunian All of this. 10000% this.
venting, temporal flux/illness
it took them months to just tell me 'will I be the donor' plus blood testing they said would be insurance'd
which it wasn't
they gave estimates of late july
before giving my brother a month-long regimen of chemo meds in the middle of july
just this whole thing has been a coordination disaster and yeah im actually *really fucking mad*.
could go back to Seattle, viable, but even that feels like too-loose footing since I don't know when i'll need to be back.
Rrg.